TY - JOUR
T1 - Profiles of Web-based Portal Users with Inflammatory Bowel Disease
AU - Noureldin, Mohamed
AU - Newman, Kira L.
AU - Higgins, Peter D.R.
AU - Piette, John D.
AU - Resnicow, Kenneth
AU - Louissaint, Jeremy
AU - Kenney, Brooke
AU - Berinstein, Jeffrey
AU - Waljee, Akbar K.
AU - Zhu, Ji
AU - Cohen-Mekelburg, Shirley
N1 - Publisher Copyright:
© 2024 Oxford University Press. All rights reserved.
PY - 2024/1/1
Y1 - 2024/1/1
N2 - Background: Web-based portals can enhance communication between patients and providers to support IBD self-management and improve care. We aimed to identify portal use patterns of patients with inflammatory bowel disease (IBD) to inform future web portal-based interventions and portal design. Methods: Patients with IBD receiving care at the University of Michigan between 2012 and 2021 were identified. Meta-data from electronic logs of each patient’s most recent year of portal use were abstracted. Portal engagement was characterized in terms of intensity (ie, frequency of use); comprehensiveness (ie, number of portal functions used); and duration (ie, quarters per year of portal use). We used k-means clustering, a machine-learning technique, to identify groupings of portal users defined in terms of engagement features. Results: We found 5605 patients with IBD who had accessed their portal account at least once. The average age was 41.2 years (SD 16.7), 3035 (54.2%) were female, and 2214 (39.5%) received immune-targeted therapies. We identified 3 patterns of portal engagement: (1) low intensity users (29.5%); (2) moderate intensity, comprehensive, and sustained users (63.3%); and (3) high intensity, comprehensive, sustained users (7.2%). Patients with more intense, comprehensive, and sustained use of the portal were older, female, with more comorbidities, and were more likely to receive immune-targeted therapies. Conclusion: Understanding distinct patterns of portal use can inform portal-based interventions and portal design. Patient portals may be particularly helpful in delivering assistance to those with comorbidities and those receiving immune-targeted therapies—many of whom demonstrate more intense, comprehensive, and sustained portal use.
AB - Background: Web-based portals can enhance communication between patients and providers to support IBD self-management and improve care. We aimed to identify portal use patterns of patients with inflammatory bowel disease (IBD) to inform future web portal-based interventions and portal design. Methods: Patients with IBD receiving care at the University of Michigan between 2012 and 2021 were identified. Meta-data from electronic logs of each patient’s most recent year of portal use were abstracted. Portal engagement was characterized in terms of intensity (ie, frequency of use); comprehensiveness (ie, number of portal functions used); and duration (ie, quarters per year of portal use). We used k-means clustering, a machine-learning technique, to identify groupings of portal users defined in terms of engagement features. Results: We found 5605 patients with IBD who had accessed their portal account at least once. The average age was 41.2 years (SD 16.7), 3035 (54.2%) were female, and 2214 (39.5%) received immune-targeted therapies. We identified 3 patterns of portal engagement: (1) low intensity users (29.5%); (2) moderate intensity, comprehensive, and sustained users (63.3%); and (3) high intensity, comprehensive, sustained users (7.2%). Patients with more intense, comprehensive, and sustained use of the portal were older, female, with more comorbidities, and were more likely to receive immune-targeted therapies. Conclusion: Understanding distinct patterns of portal use can inform portal-based interventions and portal design. Patient portals may be particularly helpful in delivering assistance to those with comorbidities and those receiving immune-targeted therapies—many of whom demonstrate more intense, comprehensive, and sustained portal use.
KW - Crohn’s disease
KW - digital health
KW - self-management
KW - ulcerative colitis
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U2 - 10.1093/ibd/izad056
DO - 10.1093/ibd/izad056
M3 - Article
C2 - 37071851
AN - SCOPUS:85181760903
SN - 1078-0998
VL - 30
SP - 83
EP - 89
JO - Inflammatory bowel diseases
JF - Inflammatory bowel diseases
IS - 1
ER -