TY - JOUR
T1 - Learning networks in pediatric heart failure and transplantation
AU - O’Connor, Matthew J.
AU - Lorts, Angela
AU - Kwiatkowski, David
AU - Butts, Ryan
AU - Barnes, Aliessa
AU - Jeewa, Aamir
AU - Knoll, Christopher
AU - Fenton, Matthew
AU - McQueen, Melissa
AU - Cousino, Melissa K.
AU - Shugh, Svetlana
AU - Rosenthal, David N.
N1 - Funding Information:
ACTION receives funding from Abbott, Abiomed, Berlin Heart, and Medtronic. The authors have no other relevant disclosures.
Publisher Copyright:
© 2021 Wiley Periodicals LLC
PY - 2021/8
Y1 - 2021/8
N2 - Background: Learning networks have emerged in medicine as a novel organizational structure that contains elements of quality improvement, education, and research with the goal of effecting rapid improvements in clinical care. In this article, the concept of a learning network is defined and highlighted in the field of pediatric heart failure and transplantation. Methods: Learning networks are defined, with particular attention paid to the recent creation of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) for children with heart failure and those being supported with ventricular assist devices (VAD). Results: The mission, goals, and organizational structure of ACTION are described, and recent initiatives promoted by ACTION are highlighted, such as stroke reduction initiatives, practice harmonization protocols, and use of ACTION data to support the recent US Food and Drug Administration approval of newer VAD for pediatric patients. Conclusions: The learning network, exemplified by ACTION, is distinguished from traditional clinical research collaboratives by contributions in research, quality improvement, patient-reported outcomes, and education, and serves as an effective vehicle to drive clinical improvement in the care of children with advanced heart failure.
AB - Background: Learning networks have emerged in medicine as a novel organizational structure that contains elements of quality improvement, education, and research with the goal of effecting rapid improvements in clinical care. In this article, the concept of a learning network is defined and highlighted in the field of pediatric heart failure and transplantation. Methods: Learning networks are defined, with particular attention paid to the recent creation of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) for children with heart failure and those being supported with ventricular assist devices (VAD). Results: The mission, goals, and organizational structure of ACTION are described, and recent initiatives promoted by ACTION are highlighted, such as stroke reduction initiatives, practice harmonization protocols, and use of ACTION data to support the recent US Food and Drug Administration approval of newer VAD for pediatric patients. Conclusions: The learning network, exemplified by ACTION, is distinguished from traditional clinical research collaboratives by contributions in research, quality improvement, patient-reported outcomes, and education, and serves as an effective vehicle to drive clinical improvement in the care of children with advanced heart failure.
KW - children
KW - heart failure
KW - heart transplantation
KW - learning networks
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U2 - 10.1111/petr.14073
DO - 10.1111/petr.14073
M3 - Review article
C2 - 34138489
AN - SCOPUS:85108139151
SN - 1397-3142
VL - 25
JO - Pediatric Transplantation
JF - Pediatric Transplantation
IS - 5
M1 - e14073
ER -