“It's a lot of things”: Household material hardship among Black and Hispanic parents of children with cancer

Ariana Valenzuela; Alexandria Hawkins; Anna Revette; Li Chen; Niya Xiong; Emanuele Mazzola; Ijeoma J. Eche; Kristine Karvonen; Jennifer M. Snaman; Joanne Wolfe; Kira Bona; Puja J. Umaretiya

doi:10.1002/pbc.30485

“It's a lot of things”: Household material hardship among Black and Hispanic parents of children with cancer

Ariana Valenzuela, Alexandria Hawkins, Anna Revette, Li Chen, Niya Xiong, Emanuele Mazzola, Ijeoma J. Eche, Kristine Karvonen, Jennifer M. Snaman, Joanne Wolfe, Kira Bona, Puja J. Umaretiya

Research output: Contribution to journal › Article › peer-review

1 Scopus citations

Abstract

Household material hardship (HMH)—housing, food, transportation, or utility insecurity—is an adverse social determinant of health that is modifiable in the clinical setting. This mixed-methods, single-center study explored the experiences of HMH among Black and Hispanic pediatric oncology parents utilizing a single timepoint survey (N = 60) and semi-structured interviews (N = 20 purposively sampled subcohort). Forty-four (73%) parents reported HMH. Qualitatively, participants expressed stress, anxiety, and embarrassment due to unmet basic resource needs, and childcare emerged as an additional important domain of HMH. Participants recommend a standardized approach to HMH screening and resource allocation, offering insight into targets for future intervention.

Original language	English (US)
Article number	e30485
Journal	Pediatric Blood and Cancer
Volume	70
Issue number	9
DOIs	https://doi.org/10.1002/pbc.30485
State	Published - Sep 2023
Externally published	Yes

Keywords

general
oncology
palliative care
quality of Life

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Hematology
Oncology

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10.1002/pbc.30485

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title = "“It's a lot of things”: Household material hardship among Black and Hispanic parents of children with cancer",

abstract = "Household material hardship (HMH)—housing, food, transportation, or utility insecurity—is an adverse social determinant of health that is modifiable in the clinical setting. This mixed-methods, single-center study explored the experiences of HMH among Black and Hispanic pediatric oncology parents utilizing a single timepoint survey (N = 60) and semi-structured interviews (N = 20 purposively sampled subcohort). Forty-four (73%) parents reported HMH. Qualitatively, participants expressed stress, anxiety, and embarrassment due to unmet basic resource needs, and childcare emerged as an additional important domain of HMH. Participants recommend a standardized approach to HMH screening and resource allocation, offering insight into targets for future intervention.",

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AU - Valenzuela, Ariana

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AU - Revette, Anna

AU - Chen, Li

AU - Xiong, Niya

AU - Mazzola, Emanuele

AU - Eche, Ijeoma J.

AU - Karvonen, Kristine

AU - Snaman, Jennifer M.

AU - Wolfe, Joanne

AU - Bona, Kira

AU - Umaretiya, Puja J.

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AB - Household material hardship (HMH)—housing, food, transportation, or utility insecurity—is an adverse social determinant of health that is modifiable in the clinical setting. This mixed-methods, single-center study explored the experiences of HMH among Black and Hispanic pediatric oncology parents utilizing a single timepoint survey (N = 60) and semi-structured interviews (N = 20 purposively sampled subcohort). Forty-four (73%) parents reported HMH. Qualitatively, participants expressed stress, anxiety, and embarrassment due to unmet basic resource needs, and childcare emerged as an additional important domain of HMH. Participants recommend a standardized approach to HMH screening and resource allocation, offering insight into targets for future intervention.

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KW - oncology

KW - palliative care

KW - quality of Life

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“It's a lot of things”: Household material hardship among Black and Hispanic parents of children with cancer

Abstract

Keywords

ASJC Scopus subject areas

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