TY - JOUR
T1 - Enhancing Care Partnerships Using a Rheumatology Dashboard
T2 - Bringing Together What Matters Most to Both Patients and Clinicians
AU - Van Citters, Aricca D.
AU - Taxter, Alysha J.
AU - Mathew, Stephanie D.
AU - Lawson, Erica
AU - Eseddi, Joad
AU - Del Gaizo, Vincent
AU - Ahmad, Jabeen
AU - Bajaj, Puneet
AU - Courtnay, Stacy
AU - Davila, Lesley
AU - Donaldson, Brittany
AU - Kimura, Yukiko
AU - Lee, Tzielan
AU - Mecchella, John N.
AU - Nelson, Eugene C.
AU - Pompa, Scott
AU - Tabussi, Doreen
AU - Johnson, Lisa C.
N1 - Publisher Copyright:
© 2023 The Authors. ACR Open Rheumatology published by Wiley Periodicals LLC on behalf of American College of Rheumatology.
PY - 2023/4
Y1 - 2023/4
N2 - Objective: Dashboards can support person-centered care by helping people partner with their clinicians to coproduce care based on preferences, shared decision-making, and evidence-based treatments. We engaged caregivers of children with juvenile idiopathic arthritis (JIA), adults with rheumatoid arthritis (RA), and clinicians in a pilot study to assess their experiences and the utility and impact of an electronic previsit questionnaire and point-of-care dashboard to support coproduction of rheumatology care. Methods: We employed a mixed-methods design to assess users’ perceptions of a customized electronic health record rheumatology module at four pediatric rheumatology practices and two adult rheumatology practices. We surveyed a convenience sample of caregivers of children with JIA (n = 113), adults with RA (n = 116), and clinicians (n = 12). We conducted semistructured interviews with 13 caregivers and patients and six care teams. Experiences were evaluated using descriptive statistics and thematic analyses. Results: Caregivers of children with JIA and adults with RA reported the dashboards were useful during discussions (88%) and helped them talk about what mattered most (82%), make health care decisions (83%), and create a treatment plan (77%). Clinicians provided similar feedback. Two-thirds (67%) of caregivers and adults and 55% of clinicians would recommend the dashboard to peers. System usability scores (77.1 ± 15.6) were above average. Dashboards helped users make sense of health information, communicate more effectively, and make decisions. Improvements to the dashboards and workflows could enhance patient self-management and clinician efficiency. Conclusion: Visual point-of-care dashboards can support caregivers, patients, and clinicians to coproduce rheumatology care. Findings demonstrate a need to spread and scale for broader benefit and impact.
AB - Objective: Dashboards can support person-centered care by helping people partner with their clinicians to coproduce care based on preferences, shared decision-making, and evidence-based treatments. We engaged caregivers of children with juvenile idiopathic arthritis (JIA), adults with rheumatoid arthritis (RA), and clinicians in a pilot study to assess their experiences and the utility and impact of an electronic previsit questionnaire and point-of-care dashboard to support coproduction of rheumatology care. Methods: We employed a mixed-methods design to assess users’ perceptions of a customized electronic health record rheumatology module at four pediatric rheumatology practices and two adult rheumatology practices. We surveyed a convenience sample of caregivers of children with JIA (n = 113), adults with RA (n = 116), and clinicians (n = 12). We conducted semistructured interviews with 13 caregivers and patients and six care teams. Experiences were evaluated using descriptive statistics and thematic analyses. Results: Caregivers of children with JIA and adults with RA reported the dashboards were useful during discussions (88%) and helped them talk about what mattered most (82%), make health care decisions (83%), and create a treatment plan (77%). Clinicians provided similar feedback. Two-thirds (67%) of caregivers and adults and 55% of clinicians would recommend the dashboard to peers. System usability scores (77.1 ± 15.6) were above average. Dashboards helped users make sense of health information, communicate more effectively, and make decisions. Improvements to the dashboards and workflows could enhance patient self-management and clinician efficiency. Conclusion: Visual point-of-care dashboards can support caregivers, patients, and clinicians to coproduce rheumatology care. Findings demonstrate a need to spread and scale for broader benefit and impact.
UR - http://www.scopus.com/inward/record.url?scp=85149304265&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85149304265&partnerID=8YFLogxK
U2 - 10.1002/acr2.11533
DO - 10.1002/acr2.11533
M3 - Article
C2 - 36852527
AN - SCOPUS:85149304265
SN - 2578-5745
VL - 5
SP - 190
EP - 200
JO - ACR Open Rheumatology
JF - ACR Open Rheumatology
IS - 4
ER -