TY - JOUR
T1 - Developing a deep brain stimulation neuromodulationnetwork for Parkinson disease, essential tremor, and dystonia
T2 - Report of a quality improvement project
AU - Dewey, Richard B.
AU - O'Suilleabhain, Padraig E.
AU - Sanghera, Manjit
AU - Patel, Neepa
AU - Khemani, Pravin
AU - Lacritz, Laura H.
AU - Chitnis, Shilpa
AU - Whitworth, Louis A.
N1 - Funding Information:
We thank Mark Goldberg, M.D., chairman of the Department of Neurology and Neurotherapeutics, for his financial support of this QI project. We also thank Benjamin Nguyen, MD for assistance in developing physical therapy assessment protocols and Janet Moeller, Kelly Johnson, Kristen Qualls-Yturralde, and Andrea Hassink for performing PT assessments on patients and entering this data into REDCap; Lesley Childs, MD and Ted Mau, MD, PhD for developing the speech assessment battery and Laura Toles, Janis Deane, and Amy Hamilton for performing speech assessments, and Angela Brodrick–Donohue for entering speech data into REDCap; and Judy Shaw, Leigh Carpenter, Alyssa Lee, and Shradhdha Joshi for entering neuropsychological test data into REDCap.
Publisher Copyright:
© 2016 Dewey et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
PY - 2016/10
Y1 - 2016/10
N2 - Objective: To develop a process to improve patient outcomes from deep brain stimulation (DBS) surgery for Parkinson disease (PD), essential tremor (ET), and dystonia. Methods: We employed standard quality improvement methodology using the Plan-Do-Study-Act process to improve patient selection, surgical DBS lead implantation, postoperative programming, and ongoing assessment of patient outcomes. Results: The result of this quality improvement process was the development of a neuromodulation network. The key aspect of this program is rigorous patient assessment of both motor and non-motor outcomes tracked longitudinally using a REDCap database. We describe how this information is used to identify problems and to initiate Plan-Do-Study-Act cycles to address them. Preliminary outcomes data is presented for the cohort of PD and ET patients who have received surgery since the creation of the neuromodulation network. Conclusions: Careful outcomes tracking is essential to ensure quality in a complex therapeutic endeavor like DBS surgery for movement disorders. The REDCap database system is well suited to store outcomes data for the purpose of ongoing quality assurance monitoring.
AB - Objective: To develop a process to improve patient outcomes from deep brain stimulation (DBS) surgery for Parkinson disease (PD), essential tremor (ET), and dystonia. Methods: We employed standard quality improvement methodology using the Plan-Do-Study-Act process to improve patient selection, surgical DBS lead implantation, postoperative programming, and ongoing assessment of patient outcomes. Results: The result of this quality improvement process was the development of a neuromodulation network. The key aspect of this program is rigorous patient assessment of both motor and non-motor outcomes tracked longitudinally using a REDCap database. We describe how this information is used to identify problems and to initiate Plan-Do-Study-Act cycles to address them. Preliminary outcomes data is presented for the cohort of PD and ET patients who have received surgery since the creation of the neuromodulation network. Conclusions: Careful outcomes tracking is essential to ensure quality in a complex therapeutic endeavor like DBS surgery for movement disorders. The REDCap database system is well suited to store outcomes data for the purpose of ongoing quality assurance monitoring.
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U2 - 10.1371/journal.pone.0164154
DO - 10.1371/journal.pone.0164154
M3 - Article
C2 - 27711133
AN - SCOPUS:84991243958
SN - 1932-6203
VL - 11
JO - PLoS One
JF - PLoS One
IS - 10
M1 - e0164154
ER -