TY - JOUR
T1 - Achieving consensus on patient-reported outcome measures in clinical practice for inflammatory skin disorders
AU - International Dermatology Outcome Measures
AU - American Academy of Dermatology
AU - Perez-Chada, Lourdes
AU - Taliercio, Vanina L.
AU - Gottlieb, Alice B.
AU - Van Beek, Marta
AU - Duffin, Kristina Callis
AU - Reeder, Margo
AU - Merola, Joseph F.
AU - Swerlick, Robert A.
N1 - Publisher Copyright:
© 2019 American Academy of Dermatology, Inc.
PY - 2023/1
Y1 - 2023/1
N2 - Background: International Dermatology Outcome Measures and the American Academy of Dermatology recently agreed on a physician-reported global severity measure to demonstrate quality of care in inflammatory dermatoses. Objective: Because patient-reported outcome measures are also important, we aimed to achieve consensus on 1 of these measures for clinical practice. Methods: Patients and providers participated in a consensus-building study involving a modified-Delphi technique. Voting was focused on identifying a minimal set of assessments for clinical practice, patient global assessments (PtGAs), Skindex instruments, and final instrument selection for quality improvement. Results: Among 53 stakeholders, >70% agreed that identification of patient goals, assessment of treatment harm, and assessment of the adequacy of treatment response were the minimal assessments needed for clinical practice. The most preferred PtGA was a 5-point PtGA (scale 0-4; 0 = clear, 4 = severe) having an optional check-box for worst ever. A new metric to assess change since treatment initiation, which we called a trajectory measure, was proposed. Stakeholders preferred Skindex instruments over PtGAs and a trajectory measure for clinical practice. Limitations: A small number of patients and caregivers were involved and a consensus was not reached on all items. Conclusion: PtGAs as standalone measures do not adequately capture the patient's assessment of disease severity or the effect of care. The combination of a PtGA with a Skindex instrument or another measure of health-related quality of life might provide a more comprehensive evaluation of patients in clinical practice.
AB - Background: International Dermatology Outcome Measures and the American Academy of Dermatology recently agreed on a physician-reported global severity measure to demonstrate quality of care in inflammatory dermatoses. Objective: Because patient-reported outcome measures are also important, we aimed to achieve consensus on 1 of these measures for clinical practice. Methods: Patients and providers participated in a consensus-building study involving a modified-Delphi technique. Voting was focused on identifying a minimal set of assessments for clinical practice, patient global assessments (PtGAs), Skindex instruments, and final instrument selection for quality improvement. Results: Among 53 stakeholders, >70% agreed that identification of patient goals, assessment of treatment harm, and assessment of the adequacy of treatment response were the minimal assessments needed for clinical practice. The most preferred PtGA was a 5-point PtGA (scale 0-4; 0 = clear, 4 = severe) having an optional check-box for worst ever. A new metric to assess change since treatment initiation, which we called a trajectory measure, was proposed. Stakeholders preferred Skindex instruments over PtGAs and a trajectory measure for clinical practice. Limitations: A small number of patients and caregivers were involved and a consensus was not reached on all items. Conclusion: PtGAs as standalone measures do not adequately capture the patient's assessment of disease severity or the effect of care. The combination of a PtGA with a Skindex instrument or another measure of health-related quality of life might provide a more comprehensive evaluation of patients in clinical practice.
KW - acne
KW - atopic dermatitis
KW - IDEOM
KW - inflammatory dermatoses
KW - psoriasis
KW - quality measure
KW - quality of care
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U2 - 10.1016/j.jaad.2019.09.008
DO - 10.1016/j.jaad.2019.09.008
M3 - Article
C2 - 31525439
AN - SCOPUS:85144041051
SN - 0190-9622
VL - 88
SP - 86
EP - 93
JO - Journal of the American Academy of Dermatology
JF - Journal of the American Academy of Dermatology
IS - 1
ER -