Abstract
Background: Many federal funding and regulatory agencies require patient engagement to conduct patient-centered research and drug development. We developed a liver transplantation patient-engagement program, which can serve as a model for bringing the patient perspective to digestive diseases research. Methods: Six liver transplantation patient-engagement program advisors completed training in patient engagement; participated in several virtual sessions; and completed postsession surveys. Results: Qualitative and quantitative results elucidated patient-centered liver transplantation study outcomes and barriers/facilitators to conducting clinical research. Group satisfaction was very high. Conclusions: The liver transplantation patient-engagement program model provides a paradigm for how to engage patients in the formative steps of patient-centered clinical research.
Original language | English (US) |
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Article number | e0053 |
Journal | Hepatology Communications |
Volume | 7 |
Issue number | 4 |
DOIs | |
State | Published - Apr 2023 |
ASJC Scopus subject areas
- Hepatology