TY - JOUR
T1 - Working without a net
T2 - Leukemia and lymphoma survivors' perspectives on care delivery at end-of-treatment and beyond
AU - Parry, Carla
AU - Morningstar, Elizabeth
AU - Kendall, Jeffery
AU - Coleman, Eric A.
N1 - Funding Information:
This research was supported by the National Cancer Institute, awarded to Dr. Carla Parry (NCI 5K07CA108565-02). The content of this manuscript is solely the responsibility of the authors and does not necessarily represent the official views of the National Cancer Institute or the National Institutes of Health.
PY - 2011/3
Y1 - 2011/3
N2 - This study explored survivors' perspectives on care delivery and supportive care needs during reentry. Fifty-one individual interviews were conducted with adult leukemia and lymphoma survivors, 3 to 48 months from treatment cessation. Survivors reported poor continuity of care across the patient-survivor transition, difficulty finding appropriate information/services, lack of preparation, lack of support for survivorship issues, and inadequate or poorly timed follow-up as factors contributing to adjustment difficulties at end of treatment and beyond. Improved care coordination is needed after active treatment, including use of an exit interview and delivery of services that are more congruent and better timed to meet ongoing and emergent survivorship needs.
AB - This study explored survivors' perspectives on care delivery and supportive care needs during reentry. Fifty-one individual interviews were conducted with adult leukemia and lymphoma survivors, 3 to 48 months from treatment cessation. Survivors reported poor continuity of care across the patient-survivor transition, difficulty finding appropriate information/services, lack of preparation, lack of support for survivorship issues, and inadequate or poorly timed follow-up as factors contributing to adjustment difficulties at end of treatment and beyond. Improved care coordination is needed after active treatment, including use of an exit interview and delivery of services that are more congruent and better timed to meet ongoing and emergent survivorship needs.
KW - care coordination
KW - care transitions
KW - health services
KW - oncology health services research
KW - psycho-oncology
KW - reentry
KW - survivorship
UR - http://www.scopus.com/inward/record.url?scp=79952600556&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=79952600556&partnerID=8YFLogxK
U2 - 10.1080/07347332.2010.548444
DO - 10.1080/07347332.2010.548444
M3 - Article
C2 - 21391070
AN - SCOPUS:79952600556
SN - 0734-7332
VL - 29
SP - 175
EP - 198
JO - Journal of Psychosocial Oncology
JF - Journal of Psychosocial Oncology
IS - 2
ER -