Abstract
Introduction: Essential tremor (ET) is a common neurological disorder associated with functional impairment. Emerging evidence shows that some ET caregivers experience burden, but the unique interpersonal aspects of caregiving in the context of ET have not been fully examined. Research design: Open-ended questions were administered to 98 ET care-recipient–caregiver dyads. Responses were analyzed using conventional content analysis. Results: The unique visibility of disability and feelings of embarrassment that occur with ET prompts caregivers to be highly attuned to care-recipient emotions. Providing companionship, promoting independence, and reducing embarrassment are three themes we found that describe the ET caregiving experience. Discussion: Caregiving in ET often goes beyond aiding with activities of daily living; it has a significant emotional component especially in relation to independence and embarrassment. Future studies on caregiving in ET and conditions in which disability is visible should consider using a definition of caregiving that includes emotional caregiving.
Original language | English (US) |
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Pages (from-to) | 83-91 |
Number of pages | 9 |
Journal | Research on Aging |
Volume | 42 |
Issue number | 2 |
DOIs | |
State | Published - Feb 1 2020 |
Externally published | Yes |
Keywords
- caregiving
- embarrassment
- qualitative methods
- social support
ASJC Scopus subject areas
- Social Psychology
- Health(social science)
- Geriatrics and Gerontology