Social Media and Clinical Trials in Pediatric Disease: Musings From the Bench

Leslie Nelson, Susan T. Iannaccone

Research output: Contribution to journalReview articlepeer-review

Abstract

The use of social media in clinical trials, for recruiting and retention as well as for collecting data, has become increasingly common. However, little has been documented in respect to the guidelines for its use and the possible effects it may have on clinical trials. In this review, we provide an overview of the guidance that has been published and muse the pros and cons of the use of social media in trials for rare disease.

Original languageEnglish (US)
Article number734691
JournalFrontiers in Genetics
Volume12
DOIs
StatePublished - Oct 4 2021

Keywords

  • clinical research
  • clinical trials
  • neuromuscular disease
  • social media
  • social networking

ASJC Scopus subject areas

  • Molecular Medicine
  • Genetics
  • Genetics(clinical)

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