TY - JOUR
T1 - Development of a clinician-parent home care education intervention
AU - Lane, Blake
AU - Hanke, Samuel P.
AU - Giambra, Barbara
AU - Madsen, Nicolas L.
AU - Staveski, Sandra L.
N1 - Funding Information:
Financial Support. This work is supported via the Design Thinking Award through the Center for Clinical and Translational Science and Training, Children’s Heart Association of Cincinnati. The Center for Clinical and Translational Science and Training at the University of Cincinnati is funded by the National Institutes of Health Clinical and Translational Science Award Program, grant 5UL1TR001425-04. The Clinical and Translational Science Award programme is led by the National Institutes of Health’s National Center forAdvancingTranslationalSciences.Thecontentofthiswebsiteissolelytherespon-sibilityoftheCenterforClinicalandTranslationalScienceandTraininganddoesnot necessarily represent the official views of the National Institute of Health.
Funding Information:
This work is supported via the Design Thinking Award through the Center for Clinical and Translational Science and Training, Children's Heart Association of Cincinnati. The Center for Clinical and Translational Science and Training at the University of Cincinnati is funded by the National Institutes of Health Clinical and Translational Science Award Program, grant 5UL1TR001425-04. The Clinical and Translational Science Award programme is led by the National Institutes of Health's National Center for Advancing Translational Sciences. The content of this website is solely the responsibility of the Center for Clinical and Translational Science and Training and does not necessarily represent the official views of the National Institute of Health.
Publisher Copyright:
© Cambridge University Press 2019.
PY - 2019/10/1
Y1 - 2019/10/1
N2 - Objectives: To examine the strengths and opportunities for improvement of current home care education practices to inform the development of the Home Care for Heart Health intervention, and to develop a web-based intervention for parents and clinicians with complimentary print materials that could provide the right education at the right time to foster a safer transition from hospital to home.Methods: An inter-professional focus group of parents, clinicians, and designers was formed to co-create a home care education intervention for parents of children with congenital heart disease (CHD) and their care team. We used the Integrated New Product Development process model created by Jonathon Cagan and Craig Vogel at Carnegie Mellon University to develop the intervention. This process model is a way of thinking that combines horizontal and inter-disciplinary teams, stakeholder-centric focus, and a system of qualitative discovery and development evolving towards quantitative methods of refinement.Results: Our team developed the Home Care for Heart Health intervention. The evidenced-based intervention includes a quick reference guide for parents of children with CHD, an accompanying app, family-friendly pathways, and clinician education.Conclusion: Using an inter-professional approach, our team of clinicians, parents, and design experts were able to co-create a clinician-parent home care education intervention with broad application and lifelong relevance to the Congenital Heart Disease Community.Practice Implications: Our intervention has the potential to be used as a model for other home care education interventions for parents of children with chronic illnesses.
AB - Objectives: To examine the strengths and opportunities for improvement of current home care education practices to inform the development of the Home Care for Heart Health intervention, and to develop a web-based intervention for parents and clinicians with complimentary print materials that could provide the right education at the right time to foster a safer transition from hospital to home.Methods: An inter-professional focus group of parents, clinicians, and designers was formed to co-create a home care education intervention for parents of children with congenital heart disease (CHD) and their care team. We used the Integrated New Product Development process model created by Jonathon Cagan and Craig Vogel at Carnegie Mellon University to develop the intervention. This process model is a way of thinking that combines horizontal and inter-disciplinary teams, stakeholder-centric focus, and a system of qualitative discovery and development evolving towards quantitative methods of refinement.Results: Our team developed the Home Care for Heart Health intervention. The evidenced-based intervention includes a quick reference guide for parents of children with CHD, an accompanying app, family-friendly pathways, and clinician education.Conclusion: Using an inter-professional approach, our team of clinicians, parents, and design experts were able to co-create a clinician-parent home care education intervention with broad application and lifelong relevance to the Congenital Heart Disease Community.Practice Implications: Our intervention has the potential to be used as a model for other home care education interventions for parents of children with chronic illnesses.
KW - Parent home care education
KW - design-thinking methodology
KW - discharge education
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U2 - 10.1017/S1047951119001318
DO - 10.1017/S1047951119001318
M3 - Article
C2 - 31469062
AN - SCOPUS:85071641741
SN - 1047-9511
VL - 29
SP - 1230
EP - 1235
JO - Cardiology in the Young
JF - Cardiology in the Young
IS - 10
ER -