Abstract
Collection, analysis, and dissemination of data have been part of the transplantation since its earliest days. The two largest databases containing information on pediatric cardiac transplant patients are the United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) database and the Pediatric Heart Transplant Study (PHTS). These data have enabled examination of patients undergoing transplantation, including modeling of outcomes, analysis of allocation decisions, and the examination of criteria for listing. Extensive literature exists utilizing this data, but must be read critically, recognizing the limitations presented by missing variables (whether uncollected or collected but left blank), reproducibility, and small sample sizes among pediatric patients. However, despite these limitations, these datasets provide an important resource in the ongoing examination of cardiac transplantation in children.
Original language | English (US) |
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Title of host publication | Pediatric and Congenital Cardiac Care |
Subtitle of host publication | Volume 1: Outcomes Analysis |
Publisher | Springer-Verlag London Ltd |
Pages | 193-210 |
Number of pages | 18 |
ISBN (Electronic) | 9781447165873 |
ISBN (Print) | 9781447165866 |
DOIs | |
State | Published - Jan 1 2015 |
Keywords
- Cardiac failure
- Congenital cardiac disease
- Pediatric cardiac disease
- Pediatric cardiac failure
- Pediatric cardiac transplantation
- Pediatric heart transplant study (PHTS)
- Transplantation
- United network for organ sharing/scientific registry of transplant recipients (UNOS/SRTR) database
ASJC Scopus subject areas
- General Medicine